Kailey

Kailey is our little sweet heart with a sassy side! She loves to dish out kisses and hugs. Even at 3 o' clock in the morning she requests kisses as I am laying half dead on her bed. She is very patient when working on puzzles and already completes larger ones that her big brother. She can also spell Hat, Ball, cat and a few other words and sound them out.

Kailey has also been half the reason I stay awake at night. A few days after I had Kailey we found out she had a genetic disorder called MCADD (for short). Many of you already know about this metabolic disorder from previous posts. All things relative we have been blessed to have not had too many hospital visits. The last two years she hasn't been growing though and seems to have huge food aversions among other symptoms that were so varied and inconsistent it was hard to put your finger on what was going on. Finally She went to an Endocrinoligist who did some blood test then referred us to a gastro doc. The diagnosis: Celiac disease. For those of you who don't know what that is, it is an autoimmune disorder in which your body attacks the gluten molecules traveling through the intestine. This means it also attacks the small intestine which destroys the villi whose job it is to absorb nutrients from the food. So the no growth among a number of other symptoms began to make sense. So Kailey will now have to follow a gluten-free diet the rest of her life. Initially we were sad to receive the news and a little overwhelmed with the changes to be made and the expense it is to buy alternative foods, but we are so happy that she may now finally enjoy eating and have a chance to catch up. She will be undergoing a relatively small surgery, an Endoscopy, in about three weeks so we would appreciate your prayers since it is always scary no matter how big or small the procedure. We will keep you updated!!